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The Canadian Donation and Transplantation Research Program, Patient Partner & Trainee

Ke Fan Bei is a third year PhD student at the University of Toronto in the Department of Immunology working under the supervision of Dr. Stephen Juvet. Her graduate project focuses on understanding the role of intragraft regulatory T cells, a type of immune cell that maintains homeostasis, in the driving chronic lung allograft dysfunction/function. Her research seeks to improve long-term allograft survival to provide better quality of life for transplant recipients. A goal that was influenced by her early childhood. In 1999 Ke received news that she has chronic kidney disease. She clearly remembers spending days to weeks in the maze of hallways and playrooms of Sick Children Hospital, making colorful beaded artworks as cartoons played in the background on small corner mounted TVs. After the many years, nurses and physicians became her friends and her inspiration and support, answering the curiosities of a child and the challenging questioning of a teenager. In 2011, Ke started dialysis and in 2014 she received her transplant from a close family member. Ke was exposed to scientific literature and encouraged to make a presentation on dialysis disequilibrium. Inspired, perhaps more so encouraged by the gift of her transplant, Ke is now pursuing her research in transplant immunology.



Taking a part in
Tue, Dec 05
1:30 PM - 3:00 PM EDT
Sponsored by Canadian Blood Services

This interactive workshop builds on CDTRP’s 2023 ASM Session, Developing a Framework for Evaluating PFD Impact within CDTRP. Led by Dr. Audrey L'Espérance, Sandra Holdsworth, Ke Fan Bei, and Manuel Escoto, this team has utilized indicators from the Learning Together: An Evaluation Framework for Patients and Public Engagement in Research to develop a CDTRP Evaluation Framework relevant to PFD partners, researchers, and trainee. These indicators will support data collection and build an evaluation dashboard for activities involving CDTRP PFD Partners. This workshop will introduce the priority indicator, engaging participants in a discussion to build consensus so evaluation metrics are relevant to CDTRP’s research community. 

This session is sponsored by Canadian Blood Services.

This session is supported by the Canadian Institutes of Health Research (CIHR).



Speakers: Ke Fan Bei, Manuel Escoto, Audrey L'Espérance, Sandra Holdsworth

Wed, Dec 06
1:00 PM - 2:00 PM EDT
Sponsored by Accelerating Clinical Trials Consortium

This session will review the pediatric urinary CXCL10 monitoring implementation pilot RCT, with a view to obtaining input on how best to engage with patient participants and partners with the trial. We start by introducing the trial design and goals, which will be followed by review of patient engagement to date and a panel/audience discussion to solicit feedback. Topics for engagement include effective information for potential trial participants, ongoing updates during the trial and how to incorporate the patient voice in analysis of trial outcome and subsequent knowledge translation.

This session is sponsored by the Accelerating Clinical Trial Consortium.

This session is supported by the Canadian Institutes of Health Research (CIHR).

Speakers: Ke Fan Bei, Manuel Escoto, Sherrie Logan, Tom Blydt-Hansen, Héloïse Cardinal, Marie-Chantal Fortin

 
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