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Patient Engagement Considerations for the Pediatric CXCL10 Implementation Trial

Wed, Dec 06, 01:00 PM - 02:00 PM EDT

Opus 1

This session will review the pediatric urinary CXCL10 monitoring implementation pilot RCT, with a view to obtaining input on how best to engage with patient participants and partners with the trial. We start by introducing the trial design and goals, which will be followed by review of patient engagement to date and a panel/audience discussion to solicit feedback. Topics for engagement include effective information for potential trial participants, ongoing updates during the trial and how to incorporate the patient voice in analysis of trial outcome and subsequent knowledge translation.

This session is sponsored by the Accelerating Clinical Trial Consortium.

This session is supported by the Canadian Institutes of Health Research (CIHR).

Speakers

Ke Fan Bei
Patient Partner & Trainee, The Canadian Donation and Transplantation Research Program
Manuel Escoto
Patient, Family, Donor Partnerships & Education Manager, The Canadian Donation and Transplantation Research Program
Sherrie Logan
Caregiver Partner, The Canadian Donation and Transplantation Research Program
Tom Blydt-Hansen
Director, Pediatric Multi Organ Transplant Program, BC Children's Hospital
Héloïse Cardinal
Clinician-Researcher, CHUM Research Centre
Marie-Chantal Fortin
Assistant Clinical Professor, CHUM Research Centre
 
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