Agenda
In this microkeynote session, Shaneel Pathak looks at the question "How do we make patient partners into citizen scientists to help their own health?" View it below now!
Do you have thoughts on POR and where you'd like to see it going? We'd love to hear from you and reflect on these comments during our conference's closing remarks on Wednesday; click on the link below and share your ideas. An in-person physical reflection wall will also be available on Tuesday in Edmonton in the poster area - be sure to grab a marker and share your views there, too!
In this keynote presentation, Dr. Bukola Salami will shed light on her experience using community-based participatory research methodology with immigrant, Black, and racialized communities. Dr. Salami will cover some of the issues and challenges encountered in community-based research within these communities and will discuss successes and impact on practices and policies. Discussions will focus around key ingredients to achieving success in community based participatory research as well as key equity considerations.
Speakers: Keynote Speaker: Dr. Bukola Salami, Yar Anyieth, Yawa Idi
This presentation highlights the collaboration between Alberta Health Services (AHS), the University of Alberta's College of Health Sciences, and the Alberta Machine Intelligence Institute (Amii) in utilizing artificial intelligence (AI) technologies for precision health. AHS is the largest integrated health system in Canada, and has developed a comprehensive data warehouse to collect and protect health data, enabling the construction of large population-level datasets. However, a significant portion of digital health data is stored in unstructured medical text and images, requiring extraction for research and improvement purposes. Traditionally, this process has been manual and time-consuming. However, recent advancements in natural language processing have led to the development of large language models (LLMs) like ChatGPT, which can unlock valuable information from unstructured data, providing access to actionable health data. The integration of AI technologies, particularly LLMs, shows great potential for enhancing healthcare outcomes and efficiency. The collaboration between AHS, the University of Alberta, and Amii aims to leverage these advancements to improve precision health and expand access to valuable health data.
Speakers: Dr. Ross Mitchell
The Reshape T1D study has transformed the role of clinicians and patients from active participants to proactive partners in the research process. The purpose of the study is to gain a thick description of type 1 diabetes lived experiences in Alberta and how those experiences can be mobilized into clinic practice to reshape diabetes care. The goal of this panel will be to describe the research experiences from the perspective of academics, clinicians, and patients. The intricacies of the research will be shared with full transparency to include conceptualization negotiation of the research itself, logistical aspects of incorporating patients and clinicians as researchers, personal experiences of fulfilling various roles, and learning takeaways from each panelist about considerations for undertaking this type of research.
Speakers: Jamie Boisvenue, Heather Hinz, Kim Young, Kathleen Gibson, Rose Yeung
Health data are routinely collected for multiple purposes, from multiple sources. Utilization data at the systems level documents billable health care provider visits, procedures, hospitalizations, and associated diagnoses. Electronic medical record (EMR) data at the patient and clinician level records clinical indicators such as blood pressure, lab values, health conditions, and referrals. From the patient’s perspective, patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are collected to better understand and measure health-related quality of life, health status, and experiences with healthcare. These three pillars of health data are important and offer a comprehensive view of health and health service use from different perspectives; however, they are rarely integrated, if at all.
The challenges to this type of data integration are numerous and include privacy and custodianship/data ownership considerations, as well as limitations of cohesive technology. In this panel, we will hear from a variety of perspectives, with the aim of identifying successes and potential solutions to these challenges. We will discuss the inclusion of patients in health data integration processes to improve health data usage and support innovation towards data integration at multiple levels. There are currently several pan-Canadian initiatives underway to better integrate these data sources and report more comprehensive health outcomes. The panel participants are experts and able to share stories about these initiatives.
This session will foster rich discussion among the panelists, and reach out to the audience members for questions, comments, and ideas. Everyone will be invited to contribute.
Speakers: Allison Soprovich, Dr. Kerry McBrien, Dr. Ewan Affleck, Shaneel Pathak
Scientists working with animal models of disease rarely have patient-partners or others with lived experience as part of their research team. This is not by design, but often due to how basic research is carried out. Thus, integration of the lived experience in basic/fundamental and translational research has faced multiple challenges. While funding agencies are working to reverse this trend, the strategies used may not lead to improvements. Instead, new ways need to be identified to connect researchers and people with lived experience to advance patient-oriented research in the laboratory. Here, we present a model employed by the CIHR-SPOR Chronic Pain Network that linked a basic scientist (Nader Ghasemlou, Queen’s University) with a patient-partner (Lesley Singer, Chronic Pain Network and McGill University). This partnership resulted in a dramatic shift in research the Ghasemlou Lab research program and led to the integration of additional patient-partners to the team (Jennifer Daly-Cyr, Chronic Pain Network). These interactions have been key to developing new research ideas, identifying strategies to reach new populations, and the identifying areas where future studies are necessary.
Speakers: Nader Ghasemlou, Leslie Singer, Jennifer Daly-Cyr
The workshop will provide an overview of the audience, structure, design, tools and review in crafting meaningful and intentional messages and visuals to tell stories, foster deeper connections and disseminate information. It is literally the art, creativity and human-centered dimension of knowledge mobilization.
Speakers: Candace Ramjohn
This workshop will focus on introducing the United Nations Declaration on the Rights of Indigenous Peoples (UNDRIP), and showcase how UNDRIP can be applied in practice. The workshop will open with a brief introduction about Hotıì ts’eeda and their work. Following, the presenters will introduce UNDRIP, including a brief history of the declaration. We will then focus on applying UNDRIP in practice. Concrete examples of UNDRIP application will be shared, using the Hotıì ts’eeda (NWT SPOR Support Unit) as a case study. To conclude, participants will be guided through questions to consider applying their knowledge of UNDRIP to their own workplaces or contexts. Key takeaways and next steps will be shared to facilitate participants applying UNDRIP moving forward. Workshop activities will focus on translating articles to plain language, identifying applicable articles to your workplace, and reviewing a case study example.
Speakers: Claire Hiscock, HBSc, MPH, Kyra Hanninen, BSN
This workshop will show participants how to apply implementation science principles in implementation practice. The first part of the workshop will be led by Dr. Gabrielle Zimmermann, a specialist in implementation science with the Alberta SPOR SUPPORT Unit Learning Health System Team. Dr. Zimmerman will describe a project she has undertaken to synthesize implementation guidance from the field of implementation science into a practical, functional guide for provincial teams leading implementation initiatives in the Alberta healthcare system. Topics covered will include key elements of successful implementation and user-friendly tools and resources. Dr. Rhyann McKay will then introduce her work as a Canadian Institute for Health Research (CIHR) Health System Impact Post-Doctoral Fellow working with Alberta Health Services’ Acute Care Bundle Improvement initiative. Dr. McKay will describe how to make high-level implementation guidance, including recommended tools and resources, workable in the real-world. Topics covered will include the language of implementation and using co-design approaches to design implementation activities that integrate theory and practice to local contexts. Short activities will be scattered throughout Dr. Zimmermann’s and Dr. McKay’s presentations. The final portion of the workshop will center on an activity that will have workshop participants apply concepts shared in the workshop by partnering with others to co-design implementation planning and activities.
Speakers: Gabrielle Zimmermann, Dr. Rhyann McKay
This session will strive to have participants understand and apply practices for involving Knowledge Keepers in research from the WBS Learning Pathway, will share a culturally relevant approach for collaboration on patient-oriented research in Alberta, and look at ways to bridge the gap between research evidence and health care policy.
Speakers: Catherine Turner, Maoliosa (Mo) Donald, Violet March, Meghan Elliott
The Patient and Community Engagement Research (PaCER) program is a 12-month online experiential-based learning program delivered through the University of Calgary Continuing Education in collaboration with the Alberta SPOR SUPPORT Unit, Patient Engagement Team. Teams of sponsored learners gain understanding of participatory health research approaches and methods and develop skills in participatory health research. They then apply these to design, develop and carry out a complete qualitative research project about a health issue or healthcare practice that matters to them.
PaCER teams are comprised of individuals from diverse backgrounds, perspectives, and lived experiences. PaCER projects follow an innovative PaCER process and centre on patient experience and perspective of diverse health and health care related issues. Our presentation will share about the PaCER program course content and delivery. As well, learners from previous and current PaCER teams will describe their unique projects and share reflections on their PaCER experience and additional health research work their PaCER training has supported them to pursue. We will also offer time for Q&A.
Speakers: Ingrid Nielssen, Iqmat Iyiola, Hanna Sutherland, Gary Semeniuk, Stella Severin
In this microkeynote session, Shaneel Pathak looks at the question "How do we make patient partners into citizen scientists to help their own health?" View it below now!
Do you have thoughts on POR and where you'd like to see it going? We'd love to hear from you and reflect on these comments during our conference's closing remarks on Wednesday; click on the link below and share your ideas. An in-person physical reflection wall will also be available on Tuesday in Edmonton in the poster area - be sure to grab a marker and share your views there, too!
In this keynote presentation, Dr. Bukola Salami will shed light on her experience using community-based participatory research methodology with immigrant, Black, and racialized communities. Dr. Salami will cover some of the issues and challenges encountered in community-based research within these communities and will discuss successes and impact on practices and policies. Discussions will focus around key ingredients to achieving success in community based participatory research as well as key equity considerations.
Speakers: Keynote Speaker: Dr. Bukola Salami, Yar Anyieth, Yawa Idi
This presentation highlights the collaboration between Alberta Health Services (AHS), the University of Alberta's College of Health Sciences, and the Alberta Machine Intelligence Institute (Amii) in utilizing artificial intelligence (AI) technologies for precision health. AHS is the largest integrated health system in Canada, and has developed a comprehensive data warehouse to collect and protect health data, enabling the construction of large population-level datasets. However, a significant portion of digital health data is stored in unstructured medical text and images, requiring extraction for research and improvement purposes. Traditionally, this process has been manual and time-consuming. However, recent advancements in natural language processing have led to the development of large language models (LLMs) like ChatGPT, which can unlock valuable information from unstructured data, providing access to actionable health data. The integration of AI technologies, particularly LLMs, shows great potential for enhancing healthcare outcomes and efficiency. The collaboration between AHS, the University of Alberta, and Amii aims to leverage these advancements to improve precision health and expand access to valuable health data.
Speakers: Dr. Ross Mitchell
The Reshape T1D study has transformed the role of clinicians and patients from active participants to proactive partners in the research process. The purpose of the study is to gain a thick description of type 1 diabetes lived experiences in Alberta and how those experiences can be mobilized into clinic practice to reshape diabetes care. The goal of this panel will be to describe the research experiences from the perspective of academics, clinicians, and patients. The intricacies of the research will be shared with full transparency to include conceptualization negotiation of the research itself, logistical aspects of incorporating patients and clinicians as researchers, personal experiences of fulfilling various roles, and learning takeaways from each panelist about considerations for undertaking this type of research.
Speakers: Jamie Boisvenue, Heather Hinz, Kim Young, Kathleen Gibson, Rose Yeung
Health data are routinely collected for multiple purposes, from multiple sources. Utilization data at the systems level documents billable health care provider visits, procedures, hospitalizations, and associated diagnoses. Electronic medical record (EMR) data at the patient and clinician level records clinical indicators such as blood pressure, lab values, health conditions, and referrals. From the patient’s perspective, patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are collected to better understand and measure health-related quality of life, health status, and experiences with healthcare. These three pillars of health data are important and offer a comprehensive view of health and health service use from different perspectives; however, they are rarely integrated, if at all.
The challenges to this type of data integration are numerous and include privacy and custodianship/data ownership considerations, as well as limitations of cohesive technology. In this panel, we will hear from a variety of perspectives, with the aim of identifying successes and potential solutions to these challenges. We will discuss the inclusion of patients in health data integration processes to improve health data usage and support innovation towards data integration at multiple levels. There are currently several pan-Canadian initiatives underway to better integrate these data sources and report more comprehensive health outcomes. The panel participants are experts and able to share stories about these initiatives.
This session will foster rich discussion among the panelists, and reach out to the audience members for questions, comments, and ideas. Everyone will be invited to contribute.
Speakers: Allison Soprovich, Dr. Kerry McBrien, Dr. Ewan Affleck, Shaneel Pathak
Scientists working with animal models of disease rarely have patient-partners or others with lived experience as part of their research team. This is not by design, but often due to how basic research is carried out. Thus, integration of the lived experience in basic/fundamental and translational research has faced multiple challenges. While funding agencies are working to reverse this trend, the strategies used may not lead to improvements. Instead, new ways need to be identified to connect researchers and people with lived experience to advance patient-oriented research in the laboratory. Here, we present a model employed by the CIHR-SPOR Chronic Pain Network that linked a basic scientist (Nader Ghasemlou, Queen’s University) with a patient-partner (Lesley Singer, Chronic Pain Network and McGill University). This partnership resulted in a dramatic shift in research the Ghasemlou Lab research program and led to the integration of additional patient-partners to the team (Jennifer Daly-Cyr, Chronic Pain Network). These interactions have been key to developing new research ideas, identifying strategies to reach new populations, and the identifying areas where future studies are necessary.
Speakers: Nader Ghasemlou, Leslie Singer, Jennifer Daly-Cyr
The workshop will provide an overview of the audience, structure, design, tools and review in crafting meaningful and intentional messages and visuals to tell stories, foster deeper connections and disseminate information. It is literally the art, creativity and human-centered dimension of knowledge mobilization.
Speakers: Candace Ramjohn
This workshop will focus on introducing the United Nations Declaration on the Rights of Indigenous Peoples (UNDRIP), and showcase how UNDRIP can be applied in practice. The workshop will open with a brief introduction about Hotıì ts’eeda and their work. Following, the presenters will introduce UNDRIP, including a brief history of the declaration. We will then focus on applying UNDRIP in practice. Concrete examples of UNDRIP application will be shared, using the Hotıì ts’eeda (NWT SPOR Support Unit) as a case study. To conclude, participants will be guided through questions to consider applying their knowledge of UNDRIP to their own workplaces or contexts. Key takeaways and next steps will be shared to facilitate participants applying UNDRIP moving forward. Workshop activities will focus on translating articles to plain language, identifying applicable articles to your workplace, and reviewing a case study example.
Speakers: Claire Hiscock, HBSc, MPH, Kyra Hanninen, BSN
This workshop will show participants how to apply implementation science principles in implementation practice. The first part of the workshop will be led by Dr. Gabrielle Zimmermann, a specialist in implementation science with the Alberta SPOR SUPPORT Unit Learning Health System Team. Dr. Zimmerman will describe a project she has undertaken to synthesize implementation guidance from the field of implementation science into a practical, functional guide for provincial teams leading implementation initiatives in the Alberta healthcare system. Topics covered will include key elements of successful implementation and user-friendly tools and resources. Dr. Rhyann McKay will then introduce her work as a Canadian Institute for Health Research (CIHR) Health System Impact Post-Doctoral Fellow working with Alberta Health Services’ Acute Care Bundle Improvement initiative. Dr. McKay will describe how to make high-level implementation guidance, including recommended tools and resources, workable in the real-world. Topics covered will include the language of implementation and using co-design approaches to design implementation activities that integrate theory and practice to local contexts. Short activities will be scattered throughout Dr. Zimmermann’s and Dr. McKay’s presentations. The final portion of the workshop will center on an activity that will have workshop participants apply concepts shared in the workshop by partnering with others to co-design implementation planning and activities.
Speakers: Gabrielle Zimmermann, Dr. Rhyann McKay
This session will strive to have participants understand and apply practices for involving Knowledge Keepers in research from the WBS Learning Pathway, will share a culturally relevant approach for collaboration on patient-oriented research in Alberta, and look at ways to bridge the gap between research evidence and health care policy.
Speakers: Catherine Turner, Maoliosa (Mo) Donald, Violet March, Meghan Elliott
The Patient and Community Engagement Research (PaCER) program is a 12-month online experiential-based learning program delivered through the University of Calgary Continuing Education in collaboration with the Alberta SPOR SUPPORT Unit, Patient Engagement Team. Teams of sponsored learners gain understanding of participatory health research approaches and methods and develop skills in participatory health research. They then apply these to design, develop and carry out a complete qualitative research project about a health issue or healthcare practice that matters to them.
PaCER teams are comprised of individuals from diverse backgrounds, perspectives, and lived experiences. PaCER projects follow an innovative PaCER process and centre on patient experience and perspective of diverse health and health care related issues. Our presentation will share about the PaCER program course content and delivery. As well, learners from previous and current PaCER teams will describe their unique projects and share reflections on their PaCER experience and additional health research work their PaCER training has supported them to pursue. We will also offer time for Q&A.
Speakers: Ingrid Nielssen, Iqmat Iyiola, Hanna Sutherland, Gary Semeniuk, Stella Severin
Zoom passcode (case sensitive): CF2023
This session will embed theory, patient-oriented research, and personal experiences to highlight the actions and impacts attained from collaborative research with 2SLGBTQIA+ community members in Canada. Topics of focus will include engaging the community in research, highlighting key findings from a primary care research program, and how raising voices of community members can result in impactful actions to improve care.
Speakers: Keynote Speaker: Dr. Kyle Wilby, Rheya White
ZOOM LINK: https://ualberta-ca.zoom.us/j/6522473373
The Data and Research Services team will present a one-hour workshop session on evolution of health services data in Alberta and the methodologies used for analyzing and integrating the vast amount of data from diverse data sources available. The session will focus on the strengths of rich health data in Alberta and the opportunities it avails. It will provide enriching information to broad audience including health services researchers interested in accessing data for research purposes, students aspiring to learn about what data are available, policy makers intending to use data for policy planning and decision making, patients desiring to understand how patient health data is being utilized for research, and clinicians as well as clinician scientists interested in evaluating and improving health care services through evidence-based research using real data.
Speakers: Jeff Bakal, Bing Li
ZOOM LINK: https://ucalgary.zoom.us/j/96390800600?pwd=aERmVEJrSXhaUHlSTWNEbzJwUUVFQT09
Our panel presenters, Dr. Lisa Hartling, Sandra Zelinsky, and Dr. Mike Lang will describe their work with storytelling in health research and how it can be a powerful tool for knowledge mobilization, information sharing, data generation, and advocacy efforts. Panelists will illustrate the different formats that storytelling can take, and they will also explain the incredible flexibility, and value of storytelling. They will be accompanied by a skilled panel moderator and will discuss the topic of “Storytelling in Health Research” with each other and the audience.
Speakers: Dr. Mike Lang, Dr. Lisa Hartling, Sandra Zelinsky, Sadia Ahmed
ZOOM LINK: https://ucalgary.zoom.us/j/96004642725?pwd=Z3JQYWlDWVhFNmorclE1enRjWGFCdz09
Patient partners are often asked to be Patient-Oriented Research (POR) peer reviewers for conference abstracts, grant funding applications, publications, course modules and more. This task can be daunting to those unfamiliar with the peer-review process and more so to patient partners unsure of how to apply their POR knowledge to their evaluations.
This discussion-oriented session will be delivered in 3 parts: the first phase will orient audience members to the peer review process and share insights from our patient partners experiences with peer review processes; in the second phase we will share an assessment tool that aligns with the CIHR Patient-Oriented Research (POR) Patient Engagement Framework; the third phase will invite audience members to participate in an open discussion, facilitated by Dr. Dawn Richards, where attendees can provide feedback on the tool, and ask questions to the presenters. This offers an opportunity for attendees to comment on their experiences with peer review, the tool and its usability, as well as any other insights or perspectives helpful to co-developing the tool and other related educational resources.
Speakers: Ingrid Nielssen, Dawn Richards, Maria Ren, Veronika Kiryanova, Deb Baranac, Matthew Luzentales-Simpson
Edmonton, Online, Highlighted, and Studentship posters may be viewed below, and are also accessible with their Jamboards through here: https://app.groupize.com/a/2023-collaborative-forum/resources
Don't forget to vote for your favorite posters from each category!
These are all of the online-only posters, from presenters all throughout Canada. Be sure to check out the Edmonton, Highlighted, and Studentship Poster sessions as well, and vote for your favorites from each category below!
These are our highlighted posters, which were given the highest marks by our abstract review committee. Be sure to check out the Edmonton, Online, and Studentship Poster sessions as well and vote for your favorite from each category below!
Each year, we award a number of masters and PhD students with the AbSPORU Studentship. Recipients are a part of a year-long training program that helps them integrate patient-oriented research principles and practices into their research, and they are about halfway through the program right now. View their posters below, and be sure to check out the Edmonton, Online, and Highlighted Poster sessions as well and vote from your favorite from each category!
These are all of the posters that were presented in-person in Edmonton, now online for even more access! Don't forget check out our Online, Highlighted, and Studentship poster sessions as well, and vote for your favorite from each category!
ZOOM LINK: https://ualberta-ca.zoom.us/j/6522473373
The COVID-19 pandemic rapidly accelerated the shift to online study recruitment and data collection approaches. This had many benefits, including wider reach for participant recruitment, improved cost efficiency for researchers, and reduced barriers for participants (such as travel time and costs) to take part in research. Unfortunately, the rise of online quantitative and qualitative research has also reduced barriers for more fraudulent activity to occur. Fake participants (that is, research participants who are purposefully misrepresenting their lived experience, most usually to receive participation incentives) are increasingly sophisticated in their ability to bypass security measures implemented by the research team, as well as in their ability to impersonate genuine participants, which makes it more challenging to identify them during data collection and analysis activities.
In this session, we will share some real-world experiences of encountering fake participants in online recruitment and data collection for surveys, focus groups, and interviews. Our diverse panel of patient partners, researchers, as well as representatives from the University of Calgary Research Ethics Board, and the Calgary Police will discuss how to prevent fraud before data collection, identify fraud during and after data collection, and take ethical or legal actions to address it. The session will end with a Q & A session, so come with questions of your own to ask the panelists!
Speakers: Sandra Zelinsky, Dr. Stacey Page, Karen MacDonald, Maria Castrellon Pardo, Cst Michelle Jansen, Aida Fernandes
ZOOM LINK: https://ucalgary.zoom.us/j/96390800600?pwd=aERmVEJrSXhaUHlSTWNEbzJwUUVFQT09
This panel will include perspectives from a Jordan’s Principal Coordinator for a Cree First Nation in Saskatchewan, a University researcher and ally, and a graduate student ally. They will describe the development and history of longstanding relationships and partnerships between Peter Ballantyne Cree Nation Health Services and the community of Pelican Narrows, and the School of Rehabilitation Science at University of Saskatchewan. They will provide examples of community-directed needs assessment that involved story-telling, and collaborative analysis which was used to plan a hybrid virtual care model for adult back and musculoskeletal pain. They will also describe how these learnings and the leadership of patient partners and Jordan’s Principle Coordinators are being utilized as a framework for development of a pediatric rehabilitation needs assessment in community, a pilot pediatric telerehabilitation clinic, and expansion to interprofessional pediatric programming in three Cree communities. The journey includes the collaborative development of meaningful and culturally responsive health outcomes measures. The Jordan’s Principle Coordinator will describe the lived experience in community, her critical role in ensuring children’s health services, and why pediatric rehabilitation is needed where children live, in their home communities. Research methods will be described, as well as the critical role of community and patient direction throughout the entire project and process.
Speakers: Stacey Lovo BScPT, MSc, PhD, Rosalie Dostie
ZOOM LINK: https://ualberta-ca.zoom.us/j/6522473373
Dr. Leeies will present reflections and experiences regarding the real-life integration of patient and community perspectives in a health equity focused research program on sexual orientation and gender identity in organ and tissue donation and transplantation.
Speakers: Murdoch Leeies
ZOOM LINK: https://ucalgary.zoom.us/j/96390800600?pwd=aERmVEJrSXhaUHlSTWNEbzJwUUVFQT09
Moving patient-oriented research into policy and practice almost always requires change in complex settings. These settings can exist anywhere within a larger system (e.g., on a single floor of a hospital, among numerous long-term care facilities, across a health authority, etc.). Regardless, understanding the broad context within which we aim to create change is vital to ensuring that change is successful and sustainable. Social network analysis is an increasingly popular method for gaining insight into who is involved in implementing change, how they are all connected, how they work together, and what opportunities there are in networks to accelerate change. This international panel will provide insights from various change initiatives that used social network analysis to support the implementation of health innovations. Panelists will detail the opportunities and challenges for conducting social network analysis and the value that this method brings when trying to improve health practices and policy.
Speakers: Stephanie Brooks, Dr. Yinfei Duan, Reza Yousefi-Nooarie, Alicia Bunger
ZOOM LINK: https://ucalgary.zoom.us/j/96004642725?pwd=Z3JQYWlDWVhFNmorclE1enRjWGFCdz09
Implicit biases are automatic, unconscious attitudes and stereotypes about people based on their socio-economic or cultural background, skin tone, language, age, gender, weight, use of substances, etc. Healthcare providers hold implicit biases that have been identified as an important factor underlying safety and quality of care. Some patients are treated differently because of implicit biases; they feel judged, stigmatized, and may not receive adequate or appropriate healthcare.
Stories and storytelling help us to make sense of our thoughts, feelings, and experiences. Stories can help us understand our environment, our interactions with others and let us formulate and convey our values, beliefs and insights for ourselves and others. Digital Storytelling (DST) in research can be used as a method that increases the involvement of people with lived experience in health research. DST can help to reach and elevate the voices of underrepresented populations and can meaningfully engage populations who value storytelling as a way of knowing and understanding. Digital stories are short, personal video narratives created with the combination of voice recording, pictures and sound that are put together in a workshop environment using the 7-step methodology developed by the Story Center, USA. Digital stories are a validated tool which personalizes quantitative data, and explores what matters most to patients. Further, multimedia stories that are concise also act as a powerful knowledge translation tool and can facilitate reflective educational practice.
In this workshop, we will explore the use of DST as reflective practice for educational purposes in healthcare by viewing 4 personal digital stories developed by patient research partners on the topic of bias and stigmatization. We will take some time to reflect and examine our personal thoughts, insights, and biases on each individual story, discuss as a group, and share some personal reflections from each storyteller.
Speakers: James Thesen, Mindy Tindall, Dr. Lorraine Thirsk
ZOOM LINK: https://ualberta-ca.zoom.us/j/6522473373
In this session, attendees will explore the perspective of youth and their involvement with a consultative service that advises research teams on their projects and outputs, hear from a trainee about the importance of patient stories and how this has informed their research efforts, and consider the impact of youth advocacy in driving forward awareness and change.
Speakers: Linda Nguyen, PhD, Carrie Costello, Logan Wong BSW, MSW RSW (He/Him), Dr. Dan Goldowitz
ZOOM LINK: https://ucalgary.zoom.us/j/94563097002?pwd=TWY5QVZVcDZJRThiZTViTVpqTlYrUT09
Patient advisor D'Arcy Duquette will deliver the closing remarks of the Collaborative Forum, which will discuss patient and community members' thoughts and ideas on patient-oriented research and how it can develop into the future.
Speakers: D'arcy Duquette
Zoom passcode (case sensitive): CF2023
This session will embed theory, patient-oriented research, and personal experiences to highlight the actions and impacts attained from collaborative research with 2SLGBTQIA+ community members in Canada. Topics of focus will include engaging the community in research, highlighting key findings from a primary care research program, and how raising voices of community members can result in impactful actions to improve care.
Speakers: Keynote Speaker: Dr. Kyle Wilby, Rheya White
ZOOM LINK: https://ualberta-ca.zoom.us/j/6522473373
The Data and Research Services team will present a one-hour workshop session on evolution of health services data in Alberta and the methodologies used for analyzing and integrating the vast amount of data from diverse data sources available. The session will focus on the strengths of rich health data in Alberta and the opportunities it avails. It will provide enriching information to broad audience including health services researchers interested in accessing data for research purposes, students aspiring to learn about what data are available, policy makers intending to use data for policy planning and decision making, patients desiring to understand how patient health data is being utilized for research, and clinicians as well as clinician scientists interested in evaluating and improving health care services through evidence-based research using real data.
Speakers: Jeff Bakal, Bing Li
ZOOM LINK: https://ucalgary.zoom.us/j/96390800600?pwd=aERmVEJrSXhaUHlSTWNEbzJwUUVFQT09
Our panel presenters, Dr. Lisa Hartling, Sandra Zelinsky, and Dr. Mike Lang will describe their work with storytelling in health research and how it can be a powerful tool for knowledge mobilization, information sharing, data generation, and advocacy efforts. Panelists will illustrate the different formats that storytelling can take, and they will also explain the incredible flexibility, and value of storytelling. They will be accompanied by a skilled panel moderator and will discuss the topic of “Storytelling in Health Research” with each other and the audience.
Speakers: Dr. Mike Lang, Dr. Lisa Hartling, Sandra Zelinsky, Sadia Ahmed
ZOOM LINK: https://ucalgary.zoom.us/j/96004642725?pwd=Z3JQYWlDWVhFNmorclE1enRjWGFCdz09
Patient partners are often asked to be Patient-Oriented Research (POR) peer reviewers for conference abstracts, grant funding applications, publications, course modules and more. This task can be daunting to those unfamiliar with the peer-review process and more so to patient partners unsure of how to apply their POR knowledge to their evaluations.
This discussion-oriented session will be delivered in 3 parts: the first phase will orient audience members to the peer review process and share insights from our patient partners experiences with peer review processes; in the second phase we will share an assessment tool that aligns with the CIHR Patient-Oriented Research (POR) Patient Engagement Framework; the third phase will invite audience members to participate in an open discussion, facilitated by Dr. Dawn Richards, where attendees can provide feedback on the tool, and ask questions to the presenters. This offers an opportunity for attendees to comment on their experiences with peer review, the tool and its usability, as well as any other insights or perspectives helpful to co-developing the tool and other related educational resources.
Speakers: Ingrid Nielssen, Dawn Richards, Maria Ren, Veronika Kiryanova, Deb Baranac, Matthew Luzentales-Simpson
Edmonton, Online, Highlighted, and Studentship posters may be viewed below, and are also accessible with their Jamboards through here: https://app.groupize.com/a/2023-collaborative-forum/resources
Don't forget to vote for your favorite posters from each category!
These are all of the online-only posters, from presenters all throughout Canada. Be sure to check out the Edmonton, Highlighted, and Studentship Poster sessions as well, and vote for your favorites from each category below!
These are our highlighted posters, which were given the highest marks by our abstract review committee. Be sure to check out the Edmonton, Online, and Studentship Poster sessions as well and vote for your favorite from each category below!
Each year, we award a number of masters and PhD students with the AbSPORU Studentship. Recipients are a part of a year-long training program that helps them integrate patient-oriented research principles and practices into their research, and they are about halfway through the program right now. View their posters below, and be sure to check out the Edmonton, Online, and Highlighted Poster sessions as well and vote from your favorite from each category!
These are all of the posters that were presented in-person in Edmonton, now online for even more access! Don't forget check out our Online, Highlighted, and Studentship poster sessions as well, and vote for your favorite from each category!
ZOOM LINK: https://ualberta-ca.zoom.us/j/6522473373
The COVID-19 pandemic rapidly accelerated the shift to online study recruitment and data collection approaches. This had many benefits, including wider reach for participant recruitment, improved cost efficiency for researchers, and reduced barriers for participants (such as travel time and costs) to take part in research. Unfortunately, the rise of online quantitative and qualitative research has also reduced barriers for more fraudulent activity to occur. Fake participants (that is, research participants who are purposefully misrepresenting their lived experience, most usually to receive participation incentives) are increasingly sophisticated in their ability to bypass security measures implemented by the research team, as well as in their ability to impersonate genuine participants, which makes it more challenging to identify them during data collection and analysis activities.
In this session, we will share some real-world experiences of encountering fake participants in online recruitment and data collection for surveys, focus groups, and interviews. Our diverse panel of patient partners, researchers, as well as representatives from the University of Calgary Research Ethics Board, and the Calgary Police will discuss how to prevent fraud before data collection, identify fraud during and after data collection, and take ethical or legal actions to address it. The session will end with a Q & A session, so come with questions of your own to ask the panelists!
Speakers: Sandra Zelinsky, Dr. Stacey Page, Karen MacDonald, Maria Castrellon Pardo, Cst Michelle Jansen, Aida Fernandes
ZOOM LINK: https://ucalgary.zoom.us/j/96390800600?pwd=aERmVEJrSXhaUHlSTWNEbzJwUUVFQT09
This panel will include perspectives from a Jordan’s Principal Coordinator for a Cree First Nation in Saskatchewan, a University researcher and ally, and a graduate student ally. They will describe the development and history of longstanding relationships and partnerships between Peter Ballantyne Cree Nation Health Services and the community of Pelican Narrows, and the School of Rehabilitation Science at University of Saskatchewan. They will provide examples of community-directed needs assessment that involved story-telling, and collaborative analysis which was used to plan a hybrid virtual care model for adult back and musculoskeletal pain. They will also describe how these learnings and the leadership of patient partners and Jordan’s Principle Coordinators are being utilized as a framework for development of a pediatric rehabilitation needs assessment in community, a pilot pediatric telerehabilitation clinic, and expansion to interprofessional pediatric programming in three Cree communities. The journey includes the collaborative development of meaningful and culturally responsive health outcomes measures. The Jordan’s Principle Coordinator will describe the lived experience in community, her critical role in ensuring children’s health services, and why pediatric rehabilitation is needed where children live, in their home communities. Research methods will be described, as well as the critical role of community and patient direction throughout the entire project and process.
Speakers: Stacey Lovo BScPT, MSc, PhD, Rosalie Dostie
ZOOM LINK: https://ualberta-ca.zoom.us/j/6522473373
Dr. Leeies will present reflections and experiences regarding the real-life integration of patient and community perspectives in a health equity focused research program on sexual orientation and gender identity in organ and tissue donation and transplantation.
Speakers: Murdoch Leeies
ZOOM LINK: https://ucalgary.zoom.us/j/96390800600?pwd=aERmVEJrSXhaUHlSTWNEbzJwUUVFQT09
Moving patient-oriented research into policy and practice almost always requires change in complex settings. These settings can exist anywhere within a larger system (e.g., on a single floor of a hospital, among numerous long-term care facilities, across a health authority, etc.). Regardless, understanding the broad context within which we aim to create change is vital to ensuring that change is successful and sustainable. Social network analysis is an increasingly popular method for gaining insight into who is involved in implementing change, how they are all connected, how they work together, and what opportunities there are in networks to accelerate change. This international panel will provide insights from various change initiatives that used social network analysis to support the implementation of health innovations. Panelists will detail the opportunities and challenges for conducting social network analysis and the value that this method brings when trying to improve health practices and policy.
Speakers: Stephanie Brooks, Dr. Yinfei Duan, Reza Yousefi-Nooarie, Alicia Bunger
ZOOM LINK: https://ucalgary.zoom.us/j/96004642725?pwd=Z3JQYWlDWVhFNmorclE1enRjWGFCdz09
Implicit biases are automatic, unconscious attitudes and stereotypes about people based on their socio-economic or cultural background, skin tone, language, age, gender, weight, use of substances, etc. Healthcare providers hold implicit biases that have been identified as an important factor underlying safety and quality of care. Some patients are treated differently because of implicit biases; they feel judged, stigmatized, and may not receive adequate or appropriate healthcare.
Stories and storytelling help us to make sense of our thoughts, feelings, and experiences. Stories can help us understand our environment, our interactions with others and let us formulate and convey our values, beliefs and insights for ourselves and others. Digital Storytelling (DST) in research can be used as a method that increases the involvement of people with lived experience in health research. DST can help to reach and elevate the voices of underrepresented populations and can meaningfully engage populations who value storytelling as a way of knowing and understanding. Digital stories are short, personal video narratives created with the combination of voice recording, pictures and sound that are put together in a workshop environment using the 7-step methodology developed by the Story Center, USA. Digital stories are a validated tool which personalizes quantitative data, and explores what matters most to patients. Further, multimedia stories that are concise also act as a powerful knowledge translation tool and can facilitate reflective educational practice.
In this workshop, we will explore the use of DST as reflective practice for educational purposes in healthcare by viewing 4 personal digital stories developed by patient research partners on the topic of bias and stigmatization. We will take some time to reflect and examine our personal thoughts, insights, and biases on each individual story, discuss as a group, and share some personal reflections from each storyteller.
Speakers: James Thesen, Mindy Tindall, Dr. Lorraine Thirsk
ZOOM LINK: https://ualberta-ca.zoom.us/j/6522473373
In this session, attendees will explore the perspective of youth and their involvement with a consultative service that advises research teams on their projects and outputs, hear from a trainee about the importance of patient stories and how this has informed their research efforts, and consider the impact of youth advocacy in driving forward awareness and change.
Speakers: Linda Nguyen, PhD, Carrie Costello, Logan Wong BSW, MSW RSW (He/Him), Dr. Dan Goldowitz
ZOOM LINK: https://ucalgary.zoom.us/j/94563097002?pwd=TWY5QVZVcDZJRThiZTViTVpqTlYrUT09
Patient advisor D'Arcy Duquette will deliver the closing remarks of the Collaborative Forum, which will discuss patient and community members' thoughts and ideas on patient-oriented research and how it can develop into the future.
Speakers: D'arcy Duquette
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