Sandra Holdsworth
Sandra Holdsworth worked in banking for 30 years before, she received a liver transplant in 1997, following years of undiagnosed rare liver disease and Crohn’s disease. She now lives with a permanent ostomy, chronic kidney disease, and PTSD. Sandra is a Patient Partner co-lead with the Canadian Donation Transplantation Research Program (CDTRP), focusing on long term outcomes, including, exercise, nutrition, and mental health. She is also an advocate for organ and tissue donation, mentoring others on their healthcare journeys.
This interactive workshop builds on CDTRP’s 2023 ASM Session, Developing a Framework for Evaluating PFD Impact within CDTRP. Led by Dr. Audrey L'Espérance, Sandra Holdsworth, Ke Fan Bei, and Manuel Escoto, this team has utilized indicators from the Learning Together: An Evaluation Framework for Patients and Public Engagement in Research to develop a CDTRP Evaluation Framework relevant to PFD partners, researchers, and trainee. These indicators will support data collection and build an evaluation dashboard for activities involving CDTRP PFD Partners. This workshop will introduce the priority indicator, engaging participants in a discussion to build consensus so evaluation metrics are relevant to CDTRP’s research community.
This session is sponsored by Canadian Blood Services.
This session is supported by the Canadian Institutes of Health Research (CIHR).
Speakers: Ke Fan Bei, Manuel Escoto, Audrey L'Espérance, Sandra Holdsworth
The main objective of this session is to engage a dialogue to help understand patients' experience and to better appreciate their needs in order to optimize health status and wellness in the context of liver transplantation. We propose a panel discussion involving speakers adressing nutrition (Chantal Bémeur, RD, PhD), exercise/physical activity and mental health (Isabelle Dorée, PhD) with the essential and rich contribution of a patient partner (Sandra Holdsworth) as a whole. Examples of topics discussed, in the context of the holistic view, include available and required tools to provide information on aspects of health status that are relevant to quality of life, physical and mental health. The ultimate goal is to dress a meaningful portrait of the situation and guide future research focusing on patients' needs.
This session is supported by the Canadian Institutes of Health Research (CIHR).
Speakers: Chantal Bémeur, Sandra Holdsworth, Isabelle Doré
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